• NQF is working with an array of stakeholders, including patients and patient advocates, clinicians, specialty societies, payers, data and testing experts, measurement developers, and others to identify and prioritize measure concepts to develop into performance measures to fill important measurement gaps.

    A key focus of the Measure Incubator™ is the identification and incubation of patient-reported outcome (PRO) performance measures (PRO-PM). These measures aim to capture what is most important to patients and to amplify the patient’s “voice” in the measurement of healthcare performance. The majority of measures in the Measure Incubator are PRO-PMs.

    Current projects in the Measure Incubator include:

    • A chronic obstructive pulmonary disease (COPD) PRO-PM in development by Minnesota Community Measurement. The Measure Incubator received funding from GlaxoSmithKline to support this project.
    • A multiple sclerosis (MS) performance measure focused on patient-reported outcomes in the clinical setting in development, with funding from Biogen.
    • Outcome measures for rheumatoid arthritis (RA), including a measure focused on treat-to-target approaches and a PRO-PM, made possible with support from Bristol-Myers Squibb.
    • Outcome measures to assess survival rates for individuals with: 1) lung cancer and 2) melanoma, made possible with support from Bristol-Myers Squibb.

    Completed projects in the Measure Incubator include:

    • Work with PatientsLikeMe®, with funding from the Robert Wood Johnson Foundation, to test a novel approach to gather broad patient input in developing PRO-PMs.

    Completed Measure Incubator Strategy Sessions include:

    • Hospice and palliative care person-centered measurement, funded by Compassus. An Expert Panel identified a roadmap for developing PRO-PMs for hospice and palliative care.
    • Pain management in acute care settings, funded by Mallinckrodt. An Expert Panel identified measure concepts for pain management in the perioperative setting, including concepts focused on opioid use.
    • Obesity care, funded by NovoNordisk. An Expert Panel identified outcome measure concepts focused on serial body mass index tracking and shared decision making.
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