• NQF is working with an array of stakeholders, including patients and patient advocates, clinicians, specialty societies, payers, data and testing experts, measurement developers, and others to identify and prioritize measure concepts to develop into performance measures to fill high priority gaps where quality measures are needed to improve health outcomes.

    A key focus of the Measure Incubator® is the identification and incubation of patient-reported outcome (PRO) performance measures (PRO-PM). These measures aim to capture what is most important to patients and to amplify the patient’s “voice” in the measurement of healthcare performance. The majority of measures in the Measure Incubator are PRO-PMs.

    Current projects in the Measure Incubator include:

    • A chronic obstructive pulmonary disease (COPD) PRO-PM in development by Minnesota Community Measurement. The Measure Incubator received funding from GlaxoSmithKline to support this
      project.
    • Outcome measures for rheumatoid arthritis (RA), including a
      measure focused on treat-to-target approaches and a PRO-PM
      (PDF), made possible with support from Bristol-Myers Squibb.
    • Outcome measures to assess survival rates for individuals with:
      1) lung cancer (PDF) and 2) melanoma (PDF), made possible with support from
      Bristol-Myers Squibb.
    • Work with AARP and OptumLabs to select novel measure
      development and/or testing proposals for AARP’s 2017 Quality Measures Innovation Grant program.
    • A lung cancer PRO-PM, made possible with support from Bristol-Myers Squibb.
    • Performance measures of serial body mass index and shared decision-making, with funding from NovoNordisk.
    • A collaboration with Integrated Health Association to develop and pilot a benchmarking framework (PDF) for California ACOs that could serve as a national model.
    • Work with Pharmacy Quality Alliance (PQA) and National Health Council (NHC), with funding from Merck & Co., Inc., to create a
      rubric for assessing the patient-centeredness of quality measure
      development and implementation.
    • Food insecurity measure development and testing, which aims to develop and test three measures: 1) screening 2) appropriate clinical action and 3) change in food insecurity. This Measure Incubator project is supported by Humana.

    Upcoming strategy sessions in the Measure Incubator include:

    • Measure concepts related to measuring patient-reported outcomes for advanced prostate cancer, with
      support from Johnson & Johnson Health Care Systems, Inc. (Janssen).
    • Measure concepts related to symptom control and opioid use in patients with inflammatory bowel
      disease (IBD), with support from Johnson & Johnson Health Care Systems, Inc. (Janssen).
    • Measure concepts related to timely and appropriate biomarker screening and treatment for common genetic mutations in non-small cell lung cancer (NSCLC), with support from Genentech, Inc.
    • Measure concepts of early detection and patient- and caregiver-centered care for early-stage Alzheimer’s Disease, with support from Genentech, Inc.

    Completed projects in the Measure Incubator include:

    • Work with PatientsLikeMe®, with funding from the Robert Wood Johnson Foundation, to test a novel
      approach to gather broad patient input in developing PRO-PMs.
    • Initial development of a multiple sclerosis (MS) performance measure (PDF) focused on patient-reported outcomes in the clinical setting, with funding from Biogen. An Expert Panel recommended development of a performance measure assessing the use of an MS-specific PRO measure (PROM) in clinical care.

    Completed Measure Incubator Strategy Sessions include:

    • Hospice and palliative care person-centered measurement, funded by Compassus. An Expert Panel
      identified a roadmap for developing PRO-PMs for hospice and palliative care.
    • Pain management in acute care settings, funded by Mallinckrodt. An Expert Panel identified measure
      concepts for pain management in the perioperative setting, including concepts focused on opioid use.
    • Tools and measure concepts focused on surgical pain management, with support from
      Heron Therapeutics, Inc. An Expert Panel identified measure concepts that focus on pain management
      and prevention and management of opioid use disorder and adverse events.
    • Measure concepts focused on social determinants of health, particularly food insecurity, with support from
      the Aetna Foundation. An Expert Panel identified a suite of measure concepts that focus on addressing food insecurity within the healthcare context.
 
 
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