• NQF is working with an array of stakeholders, including patients and patient advocates, clinicians, specialty societies, payers, data and testing experts, measurement developers, and others to identify and prioritize measure concepts to develop into performance measures to fill important measurement gaps.

    A key focus of the Measure Incubator® is the identification and incubation of patient-reported outcome (PRO) performance measures (PRO-PM). These measures aim to capture what is most important to patients and to amplify the patient’s “voice” in the measurement of healthcare performance. The majority of measures in the Measure Incubator are PRO-PMs.

    Current projects in the Measure Incubator include:

    • A chronic obstructive pulmonary disease (COPD) PRO-PM in development by Minnesota Community Measurement. The Measure Incubator received funding from GlaxoSmithKline to support this project.
    • Outcome measures for rheumatoid arthritis (RA), including a measure focused on treat-to-target approaches and a PRO-PM (PDF), made possible with support from Bristol-Myers Squibb.
    • Outcome measures to assess survival rates for individuals with: 1) lung cancer and 2) melanoma, made possible with support from Bristol-Myers Squibb.
    • Work with AARP and OptumLabs to select novel measure development and/or testing proposals for AARP’s 2017 Quality Measures Innovation Grant program.
    • A lung cancer PRO-PM, made possible with support from Bristol-Myers Squibb.
    • Performance measures of serial body mass index and shared decision-making, with funding from NovoNordisk.
    • A collaboration with Integrated Health Association to develop and pilot a benchmarking framework (PDF) for California ACOs that could serve as a national model.

    Completed projects in the Measure Incubator include:

    • Work with PatientsLikeMe®, with funding from the Robert Wood Johnson Foundation, to test a novel approach to gather broad patient input in developing PRO-PMs.
    • Initial development of a multiple sclerosis (MS) performance measure (PDF) focused on patient-reported outcomes in the clinical setting, with funding from Biogen. An Expert Panel recommended development of a performance measure assessing the use of an MS-specific PRO measure (PROM) in clinical care.

    Completed Measure Incubator Strategy Sessions include:

    • Hospice and palliative care person-centered measurement, funded by Compassus. An Expert Panel identified a roadmap for developing PRO-PMs for hospice and palliative care.
    • Pain management in acute care settings, funded by Mallinckrodt. An Expert Panel identified measure concepts for pain management in the perioperative setting, including concepts focused on opioid use.
    • Tools and measure concepts focused on surgical pain management, with support from Heron Therapeutics, Inc. An Expert Panel identified measure concepts that focus on pain management and prevention and management of opioid use disorder and adverse events.
    • Measure concepts focused on social determinants of health, particularly food insecurity, with support from the Aetna Foundation. An Expert Panel identified a suite of measure concepts that focus on addressing food insecurity within the healthcare context.
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