NQF will convene a multistakeholder technical expert panel (TEP) to identify the attributes of high-quality patient-reported outcome measures (PROMs) and create step-by-step guidance for using these PROMs as the foundation for developing digital patient-reported outcome performance measures (PRO-PMs). To gather additional feedback, key informant interviews and focus groups will be conducted, in addition to public commenting periods for the environmental scan report, interim report, and technical guidance report. Read more

Description

Overview

In 2019, NQF convened a technical expert panel (TEP) and completed work that led to consensus on criteria for selecting PROs and PROMs, as well as best practices for implementing PROMs. The current initiative funded by CMS builds on the foundational work of the 2019 PRO task order and aims at developing a roadmap from PROMs to digital PRO-PMs for regulatory purposes. This entails 1) identifying the attributes of high-quality patient-reported outcome measures (PROMs); 2) creating step-by-step guidance for using these PROMs as the foundation for developing digital patient-reported outcome performance measures (PRO-PMs) for CMS regulatory purposes.

The Opportunity

Unleashing the voice of the patient through patient reported outcomes (PROs) is a key strategy of the Centers for Medicare & Medicaid Services (CMS). The National Quality Forum (NQF) has heard from diverse stakeholders about the lack of detailed technical guidance that measure developers can use to develop high impact patient-reported outcome performance measures (PRO-PMs) that are based on high quality patient reported outcome measures (PROMs) and can potentially be used in CMS’ value-based purchasing (VBP) programs or alternative payment models (APMs). This new NQF initiative aims to address this challenge by identifying attributes of high-quality PROMs and creating a roadmap for the development of digital PRO-PMs based on these attributes.

About the Project

NQF will convene a multistakeholder technical expert panel (TEP) to identify the attributes of high-quality patient-reported outcome measures (PROMs) and create step-by-step guidance for using these PROMs as the foundation for developing digital patient-reported outcome performance measures (PRO-PMs). To gather additional feedback, key informant interviews and focus groups will be conducted, in addition to public commenting periods for the environmental scan report, interim report, and technical guidance report.

Objectives

  • Provide guidance on an environmental scan report on currently available guidance on best practices for using high-quality PROMs to develop digital PRO-PMs that align with CMS’ APMs and VBP programs
  • Shape an Interim Report that discusses attributes shared by high-quality PROMs that are appropriate for use in development of digital PRO-PMs
  • Assist in creating a step-by-step Technical Guidance for using PROMs to develop digital PRO-PMs that are aligned with CMS’ APMs and VBP programs.

NQF Process

NQF will convene the multistakeholder TEP with eight (8) 90-minute web meetings over a 15-month period, with the possibility of serving on an additional six (6) web meetings over an additional period of approximately one year if the work is extended. The TEP will help develop step-by-step guidance for using PROMs to develop digital PRO-PMs, guide the recommendations that will be highlighted in the final report, provide input on the project’s components, provide expertise on measurement gaps and priorities, and explore challenges and opportunities related to developing and implementing PRO-PMs. Additionally, there is an opportunity for key informant interviews as well as focus groups to help shape project recommendations.

Funding

This project is funded under a contract with the Centers for Medicare & Medicaid Services. For information about the availability of auxiliary aids and services for NQF’s federally funded projects, please visit http://www.medicare.gov/about-us/nondiscrimination/nondiscrimination-notice.html.

Related NQF Work

Contact Information

For more information, please contact the project team at propmroadmap@qualityforum.org. Thank you for your interest in this project.

NQF will convene a multistakeholder technical expert panel (TEP) to identify the attributes of high-quality patient-reported outcome measures (PROMs) and create step-by-step guidance for using these PROMs as the foundation for developing digital patient-reported outcome performance measures (PRO-PMs). To gather additional feedback, key informant interviews and focus groups will be conducted, in addition to public commenting periods for the environmental scan report, interim report, and technical guidance report. Read more

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